Seeing Invisible Illness in Modern Storytelling

Illness is portrayed in many modern stories, and most often, the illness is invisible. This allows for the hero or heroine to remain beautiful – something our society values above all else. The one thing these ten stories have in common is that somewhere in the plot, there is sickness. Illness often appears as an antagonist inside the hero, and only rarely as something the hero must come to live with. Sometimes, the illness is not the hero’s, but it belongs to someone the hero loves. In this case, illness is the catalyst that drives the action. Sometimes it is the villain who is sick, and the illness drives the acts of evil in the story. In any case, the story is somehow about illness, life with illness, or overcoming illness. No matter how illness is used, there are positive and negative social implications.

The Pros

There are many pros to the ways illness is used in modern storytelling. Having illness figure prominently in the plots of films and TV shows has one over-arching positive impact, and that, of course, is awareness. The fact that people hear about these invisible conditions is a huge contribution to the world of someone with an illness. It is much easier to find support and acceptance when people can say “Oh, I’ve heard of that.” Storytelling shows us the trials and tribulations of living with illness. Some may rise to the occasion, like the heroes, and some may become corrupted by it, like the villains. Either way, storytelling offers insight into the world of someone struggling with illness.

The Cons

As great as awareness is, there is also a lot of bad coming from the way illness is currently portrayed in modern storytelling. Obviously, the fact that many villains are driven by some kind of illness does not really paint a pretty picture of those of us who carry the burden of illness. Generally, ill villains become evil by stopping at nothing to get their “cure.” But even the ill heroes and heroines have some cons to them. In these stories, is illness too glamorous? Too melodramatic? Usually it is, at best, unrealistic. At worst, it beautifies being sick until it ranks with hubris or some other trite trait. You know the saying “Some are born heroes. Others have heroism thrust upon them.” This is the way that heroic illness is often presented. What are the implications of equating fighting illness with heroism? Is this a realistic view? What are the problems here?

How To Be Sick

By including illness in the plot of these stories, the author does seem to imply some kind of advice on how one should be sick. In some cases, the author is sick, and in some cases not. Generally, though, an image is painted of how a sick person “should” be. The archetypes are not realistic, and perhaps even harmful to real people who are sick. There are basically three types of sick people in stories:

  • –  The Hospitalized Angel – usually a beautiful and innocent female character who is totally helpless.
  • –  The Tragically Ill Hero – the one who stands up to fight their illness, usually alone, and usually triumphant. Generally finds a cure.
  • –  The Desperate Villain – usually sympathetic and male. Will do anything to find a cure to his illness.

How to Be Well

Inversely, as these stories offer advice, both good and bad, on how to be sick, they also offer advice on how to be well. There is really only one person in a sick person’s life in movies, right? Their hero. Their champion. The person who rides out into the sunset, vowing to find a cure. Sure, when a Western hero does that for his little sister, we all cheer. But there is one thing about this that is very destructive. Say you are a healthy young man, and you have started dating this pretty girl. You like her a lot, and as the relationship gets more and more serious, you find out that she has an incurable, lifelong disease. Suddenly, you realize that the world will expect you to be her hero. Can you devote your life to that? Do you want to? How terrible must it feel to know that anyone you get involved with will have to take that place – the sick person’s champion? Wouldn’t you rather be a Tragically Ill Hero, and go off by yourself to find a cure?

What’s the main problem here? This entire scenario revolves around finding a cure. Rarely, if ever, does a couple in a story learn to live with illness.

Change It

I want people to look at these stories and, after weighing the pros and cons, and examining the stereotypes, decide what parts of the story are valuable, and think about what would need to change. Stories about illness should convey illness realistically, and offer help or comfort to those dealing with it. Some of these stories may not need changes. Others may only need a small tweak. Others still may need to be rewritten completely or altogether thrown out. I want to get people talking, get people writing, and get more stories out there about illness. I want stories that raise awareness and bring light and hope back into the lives of those who suffer.

The Stories

Repo! The Genetic Rock Opera

Synopsis: In a dystopian future, the human race almost died out from an epidemic of organ failure. After GeneCo., a company run by Rotti Largo and his three children, begins financing organ transplants, mankind is saved…but when the repossession of organs is legalized, Repo Men begin hunting their patrons down and brutally murdering them to re-attain the organs.

Nathan Wallace works for Rotti Largo as a Repo Man after the death of his wife, Marni. Rotti, who also loved her, has convinced Nathan that her death was his fault, and uses this to blackmail him into being a Repo Man. Nathan and Marni’s daughter, Shiloh, has the same grave illness her mother had, and has never left her own house. She lives a very sheltered life. She has no outward signs of illness except hair loss, which she hides by wearing a wig.

When Rotti finds out that he has a fatal disease, he decides it is time to collect and exact his ultimate revenge on Nathan for winning Marni. He lures Shiloh away from her home, promising a cure. Shiloh meets him at the Opera, where it is revealed to her that her father is a Repo Man and a murderer.

SPOILERS (skip to next title if you want to keep the ending a surprise)

Not only that, but he has also kept her sick when he could have cured her – he wanted to keep her locked away at home, sick, to protect her. Rotti hands Shiloh a gun and tells her to kill her treacherous father. She refuses, and Rotti kills him himself. As she holds her dying father in her arms, she assures him that all is forgiven, and leaves the theater with her head held high, vowing to find a cure and be the master of her own fate.

How To Train Your Dragon

In a Viking world where dragons fly, a village lives in constant fear of the onslaught of attacks from wild dragons. Children are raised to hunt and kill dragons to protect the village. As a rite of passage, each child must fight and kill a dragon to be considered an adult.

One outcast boy, Hiccup, finds a rare type of dragon sleeping in the woods. Seeing this as his only chance to kill a dragon, he attempts to kill it. He finds, however, that he does not want to. He observes the dragon from afar, and realizes after a few days that the reason it is stuck in the forest is that it’s tail is injured and it cannot properly fly.

Hiccup begins to befriend the dragon, gaining its trust. He starts trying to train him, and at the same time, he works on designing a kind of fan to attach to his tail so that he may fly again. When the Village decides to send a crew to the Dragon’s island, Hiccup shows the youth of the village how to train dragons, and together they help save the dragons’ home.

SPOILERS

In the climactic battle, Hiccup is grievously injured. He ends up losing part of his leg and must build himself a mechanism to walk again. He and his dragon are rehabilitated together, both of them learning to live with prosthetic help.

The Amazing Spider Man

Peter Parker begins snooping for clues about his parents’ mysterious disappearance when he was a child. His hunt leads him to a scientist who his parents worked with – Dr. Connors. Dr. Connors has only one arm, and is working on a serum to help humans heal themselves the way lizards do. He tests the formula on himself, and mutates into a giant lizard-man who terrorizes the city.

Meanwhile, Peter is experiencing new mutations of his own, as he develops spider powers from a spider bite he got at the lab. He rises to fight off the deranged lizard doctor, and bring peace to the city.

Final Fantasy VII: Advent Children

Cloud Strife, an ex-mercenary, has been living in isolation after he came down with the geostigma disease. The geostigma is an epidemic that has been raging all over the world. When all the children with geostigma in town start disappearing, he reconnects with his old friends and comes out of self-imposed isolation to try and find them.

SPOILERS

Three mysterious men have kidnapped them and begun to brainwash them. In a clash of swords, magic, and muscle, Cloud and his friends fight them off and save the children. A cure is found, and Cloud and the children bath in a magical pool and are cured.

“Peggy’s Turtle Song” (King of the Hill)

Bobby Hill is diagnosed with ADD and put on Ritalin. (you can read my detailed analysis here)

“Junkie Business” (King of the Hill)

Hank Hill hires a new part time employee at Strickland Propane. When he finds out the man is addicted to drugs, he tries to fire him. The man finds a loophole in the law and enrolls in a rehab. Under the Americans with Disabilities Act, Hank can no longer fire him and, in fact, must actually make ridiculous accommodations for him. In response, the other employees self-diagnose their own disabilities and demand accommodation.

“Hank’s Unmentionable Problem” (King of the Hill)

Hank Hill begins having problems with constipation, and is extremely embarrassed about it. Out of concern, his wife Peggy talks about it with everyone. Hank and his family must bond together to overcome the medical problem, no matter how embarrassing it might be. (check out my video review of this here)

The Secret Garden

After loosing her parents in a tragic epidemic in India, Mary Lennox comes to live with her uncle. She discovers a house full of secrets, a very sick cousin of hers, and a garden that’s been locked up forever. Through curiosity and bravery, Mary opens the garden, frees her Uncle from his depression, and helps her sick cousin Colin to get well and walk again.

The Secret of NIMH

When her son falls sick, Mrs. Brisby must venture forth from their small home and unlock the secrets of her husband’s life and death to save her son’s life.

The Directive

When Lynne, an introverted college student who loves books and reading, is diagnosed with Crohn’s disease, her whole life is turned upside down. As she navigates the turbulent new world of hospitals and doctors, she realizes that she must come out of her shell and change herself and her life if she is to now live with Crohn’s. (check out my review of this amazing book here and read my interview with the author here)

Summary

It was actually quite challenging to find illness portrayed in modern stories, and as you may have noticed, I did end up including one story that is not exactly modern – the Secret Garden. I felt, however, that its inclusion was valid, as this book is considered by most to be a “classic” and is still widely read today.

I had a really great time putting all this together. I keep a running list of movies and books I come across that pertain to life with illness, though I was only able to used a few from that list for this particular project. Many of the stories were allegories for illness, and those would simply not work in this setting. Perhaps one day it would be fun to put together a sister collection to this one that is mainly allegories. But for now, I focused on stories that actually featured illness as a big factor in the plot.

I would have liked it if illness was the main driving factor in each plot, but I feel that a collection like that would feature only one type of story – the Tragically Ill Hero story – and it was very important to me to show a variety of ways that illness can be used. Some of the examples are wonderful and realistic, and others are stereotyped and beautified. I am glad I was able to find a good mix, because I think that people in general have mixed up feelings about illness.

(NOTE: I wrote this as a part of my final for my storytelling class back in 2012. What are some good newer stories dealing with illness? Leave your ideas in the comments below!)

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Invisible Illness Rage Comic Contest!!!

You don’t see rage comics around as much these days, and that makes me sad. I love a good rage comic.

What’s a rage comic, you ask?

It’s a comic strip made from a series of pre-drawn expressions of various emotions– oh nevermind. I’ll just show you!

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So yes. These little characters can be strung together with doodles to convey little weird slices of life. So I thought WE NEED INVISIBLE ILLNESS RAGE COMICS.

SO LET’S HAVE A CONTEST!!!

You can make your very own rage comics by clicking here!

There’s only one rule: your comic must be about living with invisible/chronic illness.

You can submit as many times as you like!

Just make your comic, save it, and post it on instagram or twitter using the hashtag #SpoonieRageComicContest by March 20th! You have ONE MONTH! Use it well!

What will you win? Your pick of any item from the Official DoILookSick Store!

So hop to it!

Here’s my chronic illness rage comic for inspiration:

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I can’t wait to see what you guys come up with!

Pain Awareness Month Picture!

A special thanks to Ellen, Samantha, and Alicia for letting me use their likeness! Since we had 4 people total, I decided to spotlight this 1 in 4 statistic.

september pain awareness month 1 in 4

Please share this post and image and help spread the word about chronic pain!

4 Days Left to Join the Free Group Caricature!

Hey guys! Want to be a part of a free group drawing? This month is pain awareness month, and I’m doing a group drawing of chronic pain sufferers and advocates! You don’t need to have chronic pain to join! Add your face for awareness and get a free drawing of yourself! Just email your picture to diehardguardgirl@yahoo.com with the subject line GROUP PORTRAIT before midnight on September 18!

For other commissions, see the full post here!

Also be sure to check out the WEGO Health Activist Awards! The nomination period is over and the endorsement period has begun! Check out the awards DoILookSick has been nominated for here and leave your endorsement!

DoILookSick Online Caricature Event!!! Sign Up Now!

Health isn’t just skin-deep, and many of us don’t look as sick as we feel. But on the flipside, being chronically ill can have a very negative effect on our self-image. When we look in the mirror, we often see someone who is tired, a failure, lazy, too skinny or too fat, not strong enough, or any other innumerable examples of negative self-talk.

One remedy to these feelings is to see yourself through someone else’s eyes. That can be easier said than done. One whimsical way to do this is through drawings. Check out this video from Dove where a police sketch artist draws each woman twice – one based on her description of herself, and one based off a description given by someone they just met.

I love this idea. And I love having drawings done of myself! I think it’s so interesting to see how someone else sees me.

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So this idea has been rolling around in my head for some time now. I’m hosting an online portrait/caricature drawing event! You do NOT need to have an invisible illness to participate! The whole point of “Do I Look Sick” is that looks alone can’t tell you what’s going on inside a person, so we need participation of well and sick alike.

Since September is Chronic Pain Awareness Month, let’s get a good visual of people from all backgrounds and age groups and show that you can’t tell by looking who is dealing with chronic pain.

GROUP PORTRAIT – FREE

Anyone and everyone can sign up to be a part of the group portrait! It’s completely free! All I need is for you to send a picture of yourself to diehardguardgirl@yahoo.com with the subject line “GROUP PORTRAIT.” It will be in a similar style to this one I did of me and my coworkers a while back:

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SOLO PORTRAIT – $2.00

This will be the exact same drawing from the group portrait, but singled out so you have a nice little doodle of yourself. Send $2.00 via paypal as a gift (“to friends and family”) to diehardguardgirl@yahoo.com and write SOLO PORTRAIT in the note. Email me your photo and you’ll automatically also be included in the group portrait!

SUPER YOU – $5.00

A while back I did an entire blog post where I illustrated some of my favorite bloggers using their blog title to design them as a super hero. If you would like me to do this for your blog, just send $5 as a gift (“to friends and family”) via paypal to diehardguardgirl@yahoo.com and in the notes include a URL to your blog. You’ll also be included in the group portrait! Don’t have a blog? You can still be a superhero! Just tell me what powers you want or what you want your name to be and I’ll take it from there.

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MY BEST EFFORT – $10

For $10 (gift “to friends or family”) via paypal to diehardguardgirl@yahoo.com I will sit down and do my best portrait attempt for you. Write “MY BEST EFFORT” in the notes and email me your picture and I will include you in the doodle-y group portrait but I will also do a “real” portrait of just you in my style using all my patience and great effort. I don’t have any kind of recent examples of portraits I’ve done, so here’s a random drawing I did of Maleficent with some eyeball problems:

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Disclaimer: I’m not a real artist and I’m kind of a weirdo BUT I promise I will draw you with the correct amount of eyeballs in the proper places. You’ll also be included in the group portrait!

BIG SPENDER REAL LIFE PORTRAIT – $20

There are no example pictures here because it’s pretty rare that I get out real paper and pencils and paint and like, make an actual physical picture. But if you send $20 as a gift via paypal to diehardguardgirl@yahoo.com, we’ll test my artistic prowess together. Email me your photo and mailing address and I will send my original painting to you. You will of course be included in the group portrait as well!

Commissioning artwork of yourself is fun and promotes good self-image and self-talk. I’m excited to see how this portrait of all of us together comes out. I think it’ll be a really cool keepsake commemorating our community here.

The sign up period will END on September 18th – that gives you 10 days to sign up and spread the word so that our group portrait is full of awesome people! The group portrait will be posted by the end of September (which is chronic pain awareness month – don’t forget!). After September 18th I’ll let you know when the other commissioned portraits will be done depending on how many people sign up for them.

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Happy Pain Awareness Month! And remember – love yourself!