Another Award and Another Video!

Oh goodness, I just keep getting so much love from my blogging buddies that I just don’t know what to do!

I’d like to thank Teens With POTS for bestowing me with the “Inspiring Blogger Award.” You can read 7 fun facts about me and see my nominees here!

Teens With POTS (linked above) is one of my very favorite blogs. I was just starting to show symptoms of endo in high school, but I wasn’t really sick yet. High school was one of the hardest times of my life without illness, so you can see why this gal is one of my heroes. It’s enlightening and refreshing to read about illness from such a young person’s perspective. Plus, she’s a fabulous writer, which makes this blog a great read. Be sure to check her out! I’m honored to be called “inspiring” by her because she is such an inspiration to me.

teens with pots high school college
And a big congrats to her as she transitions from high school to college! 🙂

And I also wanted to announce that I’m working on another video for you guys! It’s not going to be another “Spoonie Experiment” review (although I was just working on a loose script for the next one, so don’t worry! More are coming soon!) and it’s not a new series.

See, I’ve been writing this blog for a little over a year now, and it’s had an interesting effect on my circle of friends. I now see my friends in two distinct groups – the people that read my blog, and the people that don’t. Illness-wise, the people that read my blog now ask me how I’m doing from time to time and have intelligent conversations with me on health and writing, while the others don’t. Not a big deal. But it has drawn my attention to something pretty huge – I have tons of friends and family that don’t read. Not that can’t read. They just….don’t really ever read.

if you don't read books we can't be friends

And believe me, I feel like this is a crime against humanity, but I’ve got to pick my battles here. I don’t think I can be a full time health activist and a full time turn off the TV and pick up a book activist. But! When I put out my first video for the Spoonie Experiment I had a lot of friends and family mentioning the fact that my blog exists for the first time ever! I even had a few friends who went from “yeah I saw you’re blog but I don’t really get it, like what does “do I look sick?” mean?” to “I really admire how you’re raising awareness for invisible illness.”

So, if it reaches more people and raises more awareness, I want to do it. That means I’m going to try to put out some videos at least every once in a while. But, to my loyal readers, don’t worry. This site will predominantly remain a blog. I am in love with the written word now and forever.

Here’s where I need your help!

I’d like my witty, writerly readers to help me think of some funnies. In the comments below, please respond to this prompt:

What are some phrases that only someone with a chronic illness would say?

What are some things you say that would probably sound totally bizarre to passers by?

What are some things that people with invisible illness would NEVER say?

Without giving away too much, if I like your answer, I’ll credit you in the video and link to your blog in my next post!

Comment comment comment! And please share this prompt with your witty writerly friends! Thanks!

13 thoughts on “Another Award and Another Video!

  1. Hi Rachel,
    Here we go (for chronic illness via chemical inhalation (and other types)): “What is that bloody smell?”, “Can you smell that?”, “Does this smell?”, “You stink. Have you been inside a supermarket today?”, “Oh my head hurts so f…en much!” and, “It hurts to breathe.” And one that I’m sure we all share: “If I only I didn’t have to get out of bed today, I could just lay here until I feel better.”

    In front of a passerby: “Is he/she wearing shit (meaning fragrance/perfume/hairspray)?”, “Blimey! How much perfume is she wearing? (My daughter would say this, loudly, when too young to watch her tone/words/loudness of voice.) Or worse: “Quick Mum, move. They really stink!” [child elbows me out of the way from perfume drifting off of person in front of me]. And me to a friend: “Is my mask on straight?”, “Does this mask look funny with this colour dress?” and, “What goes better with my mask? This top or that one?” [boyfriend and passerby look at me bizarrely}

    (NOTE: none of these statements about smells are helpful when you are trying to gain awareness for chemical sensitivities/environmental illness because it’s actually about the chemicals, not the ‘smell’. It’s just some of these chemicals have a smell, so by commenting on the smell itself, it can make it hard for certain people to be able acknowledge it as an ‘illness’ as opposed to a ‘perception’ of liking or disliking!)

    Something a person with an invisible illness would never say: “Today, I shall climb Mt Everest (without painkillers).”, “Oh, just get on with it. A bit of pain never stopped anyone.”, “You need to put a teaspoon of cement in that coffee of yours and harden the f… up!”


    PS: I have family who subscribe to my blog then get annoyed when so many posts arrive in their inbox. Or start reading, stop after the first paragraph and say: “How many words is this?” [like it’s torture to read or something?]

    1. Hahaha I loved these! They did inspire me, though I took a more “Americanized” spin. It’s funny how you can “hear” different speech patterns even in writing. 🙂

      And YES, what is with family? And non-reader friends? Like, come on! My husband is that way, he reeeally hates reading. But he loves talk radio and I can’t stand it, so we agree to disagree.

  2. Something somebody with a chronic illness might say say is “between a rock and a hard place?” or something they wouldn’t ever say is “don’t cry over spilt milk.” Since ppl with invisible feel a lot of pain… They’d prolly never say a phrase I just discovered: “beaver away.” That’s about all I’ve got, but good luck!

  3. “My breakfast routine didn’t really go well today.” That’s a classic one for me, and I have to think at least some percentage of other people with chronic digestive issues.

    “I can’t make it for brunch; I’ll be at home drinking ten cups of coffee and hoping for the best” is another one, though it’s reserved for my close friends only! 🙂

    1. Haha love it! I was very sad that I somehow missed this comment before I made the video. 😦 But I love them, especially the breakfast routine. I don’t know what it is about breakfast, but that’s when things go wrong. Probably because it’s the only meal that can make you late for the rest of the day, murphy’s law, yadda yadda. I once took vicodin instead of vitamins. What a day that was. Now I keep those very, VERY separate.

      1. I know you did/do. That’s why I had to stop! I’ll still be commenting and checking-in as mentioned, just had to do right by my body and Ms. Kitty who is sick as you know and has many follow-ups again, so now even more doctors! It never ends I tell you… 🙂

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