God’s Just Giving me More to Write About

First, I wanted to thank all of you for sending me the sweetest notes and well-wishes while I’ve been sick and trying to figure out why. I think there would have been a lot more crying fits if I didn’t have this great community to support and educate me. You’ll see what I mean once I start writing, but the invisible illness blogosphere has made these hard times a lot easier.

On Tuesday, I had an appointment at the student health and wellness center at UNT. I may have mentioned before in passing that I am not a fan of the health and wellness center, but with it being free for me and across the street from where I work, it was the only option for me to get medical help quickly. The last couple of times I went, I was told to just take mucinex. The first time that worked okay, but the second time I had pneumonia. It didn’t work out so good and I never forgave them for it. But, if you read my last post, you’ll see that I was kind of backed into a corner by my own health.

One of the things I dislike about the UNT doctor is that I can’t bring my husband with me. But, as any spoonie knows, having a doctor buddy is a valuable tool to not only help you describe your symptoms, but to help you remember what the doctor said later on. But this time, with some trepidation, he was let in with me. They explained that it’s okay because he’s my husband, but they usually never let boyfriends, etc in.

Once I got into the room, I was instantly at ease when I saw this on the wall:

what is endometriosis endo infograph

What are the odds?! Last time I was in, endometriosis wasn’t even listed in their system. Even though I was there for GI issues and not endo, I felt comforted, like I was just where I needed to be.

The doctor came in, and she talked and moved very fast, which I found a little distressing at first. She asked me rapid fire questions, and I kept feeling like I was getting them wrong. While she bustled about asking short, curt questions, she poked me and took my diagnostics. I began to feel like I was in a pit stop during a race. I was so worried that she would just recommend tums and send me on my way before I could even figure out what was happening. In a whirlwind, she’d gotten all the info she needed and sat down. She started writing and said “It sounds to me like you’ve got acid reflux. We’ll send you to our referral nurse and get you to a GI specialist right away.” I blinked. I was shocked. Quite a turnaround from my slow, arduous appointments with Dr. Rogoff.

She said that with GI problems, they never come to the party alone. I smiled and instantly had faith in her. This was a saying I saw all over the GI blogosphere. She gave me a ton of information and said to study it, and see if it sounded like me. She said she suspects I also have IBS. Reading through the information while I waited to see the referral nurse, my jaw hung open for a full 30 minutes. There were symptoms here I hadn’t mentioned at all, every single symptom fit me.

bert epiphany

She handed me a prescription slip and said “Here’s the prescriptions they would start you on, just to get the ball rolling.” She gave me Prilosec, another word I recognized from the blogosphere and knew a lot about. Ever since I took the first dose, it has been soooo much easer to eat food. She also gave me bentyl, which she said should help with the pain and will probably help with the endo, too. Those little blue pills are strong, though! I can take them 3 times a day, but I only take them at night. They make me so sleepy that I literally just stop functioning and fall asleep.

draco malfoy very potter musical faint

While I sat in the waiting room waiting for the referral nurse, I felt a little bewildered. I knew in my heart that IBS and acid reflux were exactly what the problem was. I knew that meant I’d have to change my diet (might as well say change my LIFE). I knew it was another incurable invisible illness. I thought of how much crying I did as I came to terms with endo and the life changes that entailed. I felt like I should cry now. Where was the despair? Where was the hopelessness?

the grinch listening gif

It never came. There wasn’t any room for it in my mind. Do you know why?

BECAUSE OF YOU!

I wasn’t thinking about my bad luck or the long journey ahead! The only thing I could think about was all the amazing bloggers who write about crohns and colitis and IBS. The only thing I could think about was all the girls I knew who taught me all about their condition – my condition. I know I don’t know everything, but I feel like I know everything. I feel like every one of your posts has armed me to the teeth, and I am ready for battle. Strong. I can live this way. I can thrive this way.

katniss everdeen hunger games three finger kiss

Don’t get me wrong – it’s not all rainbows and kittens over here. I haven’t even gotten to tell you what happened the next day… Oh yes. There’s more. But let’s try and just tackle one debilitating medical condition at a time (hey, if we can’t do that in real life, we can at least do it on the blog)!

And while we’re focusing on the bright side, I have a cautionary tale for you all. As I was researching pregnancy as a cure for endo, there was this sick and twisted little voice in the back of my head that said “but…what if you really do cure yourself of endo? What’s going to happen to the blog?”

And God said “No worries, you’ll have plenty to write about.”

Do YOU want to be armed to the teeth against chronic GI problems? Then check out these wonder women!

http://www.forwardisapace.com/

http://bottledtime.wordpress.com/

And check out the book The Directive by my friend Rosa Fontana, and be sure to read my interview with her here.

Advertisements

16 thoughts on “God’s Just Giving me More to Write About

  1. Oh man, does this sound familiar!! I have IBS too (goes with the stretchy tissues/defective organ protectant, I guess! :P) and although I got really lucky with the whole lack of despair thing too (I had just finished a senior project in high school on gluten-free baking, so I too was armed, just in a different way!), I can totally see it ruining someone’s life. You’re a champ for being so strong and full of positive energy! (Also I have to admit that I’ve never known a “normal” other than IBS, especially since my mom and sister have it, so my new, symptom-freeish normal is super wonderful.)
    I’m so glad you had such a successful, if harried and flustered, doctor’s appointment, and that the health center must have gotten its head screwed on better since the last time you were there! Hugs!!

    1. Thanks! It’s really encouraging to find so many people who have it but haven’t become bitter or isolated. If it wasn’t for friends like you guys, I don’t know where I would be right now. A much sadder place for sure. 🙂 ❤

  2. You are brave. You are beautiful. You are strong! You inspire me. Ugh I’m so sorry you have yet MORE crap to deal with… but so glad that everyone in the blogosphere is helping to keep you strong!

    Keep an eye out for a post on my blog coming up soon called “Be Brave”. You will love it. ❤ Keep on your brave woman you!

    1. Oh Sarah you’re making me blush. 😉 YOU inspire ME! Your blogs have definitely made all this easier in a different way, too. But friends are always a good thing. In fact, I think I might just go against the trend and say that FRIENDS are the real best medicine. 🙂

      I wish we were both perfectly ignorant of pain and suffering, and that we would never need to blog or find each other. But this isn’t such a bad alternative, if we can’t have our first choice. Hugs!

  3. I’m so glad you had a better experience with the student health and wellness center at UNT! I never had any luck with them because they thought I was lying about my Remicade and arthritis. I drove 2 hours just to see my normal doctor for a sinus infection. SERIOUSLY??!! Ugh, oh well!

    I hope you’re feeling better by the time Thanksgiving is around the corner. 🙂

    Cheers to a great first step!

    1. Thanks Peachy! Yes, it’s a huge hassle to be hours away from your primary care – college needs to get it together! Hopefully this is the start of a trend. Students (and everyone, really) need access to better healthcare.

      I need to catch all of you up on my whacky chronic Thanksgiving – life is in a flurry. Hopefully I’ll be able to write more when it calms down.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s