Not too long ago, my pal Stephanie sent me this picture:
And I got a good giggle out of it. Of course, the very first one is what my entire blog and movement is based on. However, reading this list got me a little riled up. I started responding to it (and NO I’m not high on pain meds, just regular crazy).
“You’re just having a bad day.” – “MY LIFE IS A BAD DAY.”
“It must be nice not having to go to work.” “IT MUST BE NICE HAVING A BODY THAT WORKS.”
“If you’d get out more…” “Not sure if sick, or just antisocial…” (I’m just antisocial. I’ll be honest.) ((BUT SHUT UP ANYWAY))
“It’s all in your head.” “I KNOW. That’s actually my greatest fear….and greatest hope….” (Being ill induces mind games. What? This post is all about LETTING THE CRAZY OUT.)
“You’re just depressed.” “Yup. Being incurably ill can do that to a person.”
“There are people worse off than you.” “…yeah, well…THERE ARE PEOPLE WORSE OFF THAN YOU TOO, and by the sounds of it I’M ONE OF THEM SO LOVE MEEE!!!”
“You’ll just have to tough it out.” “I’LL TOUGH OUT YOUR FACE!”
And, my personal LEAST favorite:
Whoa, sorry, I didn’t want to have to whip out Insanity Wolf, but you made me do it!
…anyway. Back to my story. So my friend sent me that list and it’s like “lol! So true.” and all that, but then my Doctor managed to TOTALLY TRUMP any phrase on that list, or any other list. So now, I present to you:
THE ABSOLUTE WORST THING YOU CAN SAY TO ANYONE WHO’S CHRONICALLY ILL:
“Well, you’re a medical mystery!”
….oh, great, thanks for that. I’m super glad I got to wait 40 minutes and pay 40 dollars to receive that little gem. However, I was willing to walk with that since by the time I heard it, my mysterious new symptoms seemed to have cured themselves. So even though I know better, I thought I might just try to “tough it out” and see if it goes away.
Well, things have gotten worse, which is bad, but good because it’s brought some possible answers to light. Of course, we know I have endometriosis, but these new symptoms seemed atypical of that. However, new and more frequent pain is beginning to look more and more like endometriosis relapsing/returning. If that’s the case, I have another surgery in my future. I already IRRATIONALLY PANICKED about that, so I’ll refrain from doing so here.
A culprit from the beginning has been Lactose Intolerance. This….would be tragic. I am not exaggerating when I say that my absolute favorite food is cereal with milk. It’s freaking delightful. And if I’m lactose intolerant, I will EAT IT ANYWAY because #YOLO (using hashtags on wordpress: #YOLO again)
A new culprit is a little herbal hippie pill I took a couple of times called Relora. This is just one of those little remedies you can buy
at hippie health food stores. My (very sweet and well-meaning) mother-in-law got me some because it helps you relax, and she thought that if I could chill out a little I might eat more and stop loosing so much weight. This is a very valid thought, and I’m sure I would eat more if I was more relaxed. And Relora did seem to help me feel more calm, and get to sleep easier. However, after doing a bit of research, I dug up “gastrointestinal discomfort” as a side effect. My symptoms are waaaay beyond discomfort, but I’m betting Relora didn’t help.
I got better for a little while, and even gained a pound (yay!) but then the symptoms came back and I lost my hard-earned pound (boo). Silver lining, though, is that my doctor wants to see me sooner than planned, which hopefully means answers sooner than planned.
And if he says I’m still a medical mystery, I’m unleashing Insanity Wolf on him.