Remembering Johnathan Wentz

If you google Johnathan Wentz, you’ll find an impressive record of a paralympic equestrian competitor. Johnathan rode for America in the 2012 paralympics in London. You’ll see a young man born with cerebral palsy who overcame the odds and found success in horseback riding. You’ll also see that just after his London performance, he tragically and suddenly passed away.

The fact that Johnathan was born with a semi-invisible illness and went on to achieve truly inspiring things is not the reason I wanted to write about him. Continue reading

Out There

I’m sure many of your have heard the song “Out There” from Disney’s The Hunchback of Notre Dame and equated it with the invisible illness experience – if not, take a listen:

Recently, my husband and I had some plans fall through and wound up going to hear my Dad’s band play at a bar. It was actually a pretty cool experience for me – Continue reading

Invisible / A New Documentary on Chronic Illness

Have you heard about this new film, Invisible? You guys have got to check it out.

It sounds AMAZING. You can buy their awesome t-shirt here to help support the film and spread the word. I can’t wait to see where this film goes. It’s a combination of my two greatest loves – film and health activism. I’ve been in contact with them and I’m hoping to contribute to the project as an interviewee. I’ll keep y’all posted on whether that happens or not.

In the mean time, check out the trailer, tell your friends about it, and get pumped!

You can follow the film’s progress on their Twitter and Facebook.

Adventures in the Emergency Room

While there have been plenty of times I thought I should go to the ER, I have never actually been. Usually a call to my doctor at home results in a prescription and no need to leave the house. Until yesterday.

My husband was singing at both services at church, so he was gone. I was supposed to go up there for second service but that got derailed. I woke up in intense pain that I’d rate a 10 – and it only got worse after that. I was home alone. I had hydrocodone. I took it. Two hours later I took a Tramadol too. The pain was still getting more and more intense.

I called the doctor and he said that the pain meds was the best he could do, and if I needed something stronger I’d need to go to the ER. At this point I was shaking violently and could barely walk. I wracked my brain trying to think if anyone lived really truly close by. No. So I hobbled downstairs, leaving all the animals running free in the house, and got in the car.


I shouldn’t have been driving but you know what? I couldn’t wait any more. I ran stop signs and one red light Continue reading